FA Europe

FA Europe is an umbrella organisation connecting patient support groups, clinicians, scientists and FA patient representatives from across Europe, whose collective voice, reach and influence should be greater than that of the individual organisations. We want all European countries to have the opportunity to be involved in the management and running of the organisation.

Our Vision: Equal access to optimised care for people across Europe affected by Fanconi Anemia.

Our Mission: We aim to achieve this by connecting FA patients, doctors and scientists across Europe and acting as a facilitator for education and communication, fundraising, research collaboration and sharing of best practices and infrastructure.